{"id":35116,"date":"2013-03-09T13:39:17","date_gmt":"2013-03-09T18:39:17","guid":{"rendered":"http:\/\/blogs.nejm.org\/cardioexchange\/?post_type=fellowship-training&p=35116"},"modified":"2013-03-10T08:13:04","modified_gmt":"2013-03-10T12:13:04","slug":"data-sources-for-young-investigators-blogging-from-acc-13","status":"publish","type":"post","link":"https:\/\/blogs.nejm.org\/cardioexchange\/2013\/03\/09\/data-sources-for-young-investigators-blogging-from-acc-13\/","title":{"rendered":"Data Sources for Young Investigators: Blogging from ACC.13"},"content":{"rendered":"

Several Cardiology Fellows who are attending ACC.13 in San Francisco this week are blogging for CardioExchange. The Fellows include\u00a0Tariq Ahmad<\/strong><\/a>,\u00a0<\/em>Megan Coylewright<\/strong><\/a>,\u00a0<\/em>Jeremiah Depta<\/a>,\u00a0Kumar Dharmarajan<\/a>,\u00a0<\/strong><\/em><\/strong>\u00a0Payal Kohli<\/a><\/strong><\/em>,\u00a0and \u00a0Sandeep Mangalmurti<\/a><\/strong><\/em>.\u00a0View the previous post\u00a0here<\/a>\u00a0and the next one here<\/a>. \u00a0<\/em><\/p>\n

I just attended a great session entitled \u201cGetting Access to Data:\u00a0Where Can Young Investigators Get Started in Clinical Research.”<\/a> The\u00a0session was co-moderated by Tracy Wang from Duke and Robert Yeh from\u00a0MGH. The panel included Fred Masoudi from UC Denver, Lesley Curtis\u00a0from Duke, and Gregg Fonarow from UCLA.<\/p>\n

Here are some important take home points:<\/p>\n

    \n
  1. Any trainee can submit a research proposal to the National\u00a0Cardiovascular Data Registry (NCDR). If the proposal is approved, the\u00a0trainee may be able to receive full analytic support directly from the\u00a0NCDR. No experience in outcomes research is needed to submit a\u00a0proposal, but keep in mind that the selection process is merit-based,\u00a0so proposals will need to be of high quality.<\/li>\n
  2. Access to Medicare fee-for-service claims data entails\u00a0significantly more challenges. Depending on the patient cohort, costs\u00a0can range from approximately $3,000 to over $40,000 per year of data.\u00a0Data use agreements are relatively narrow, and new proposals that\u00a0leverage already purchased data will require a re-use fee. Data files\u00a0may require significant processing following their receipt. To conduct\u00a0research with Medicare claims data, young investigators will almost\u00a0always need to collaborate with more senior investigators with access\u00a0to the data and expertise in its analysis.<\/li>\n
  3. The Healthcare Cost and Utilization Project (HCUP) data set from\u00a0the AHRQ can be a great data source to understand trends over time in\u00a0hospital-based care for the diversity of patients within 44 states,\u00a0not just Medicare fee-for-service beneficiaries. The data set is\u00a0relatively inexpensive and easy to use for young investigators still\u00a0learning how to program in SAS, STATA, and other languages.<\/li>\n
  4. The Get with the Guidelines (GWTG) registries are rich data sources\u00a0similar to the NCDR databases. As with NCDR, there is a formal\u00a0mechanism for proposal submission and review. Data resides at an\u00a0analytic center, and proposals can receive biostatistical support.\u00a0GWTG also has a young investigator seed grant program to help trainees\u00a0fund study analysis and travel to conferences to present their results.<\/li>\n
  5. Older prospective clinical trials and longitudinal patient cohorts\u00a0can be great sources of data depending on the clinical question. In\u00a0some cases, this data may be publicly available and\/or linked to\u00a0longitudinal claims data. Examples include data from the DIG study in\u00a0heart failure and the Cardiovascular Health Study.<\/li>\n
  6. Don’t be discouraged if your institution does not have strong\u00a0mentorship in outcomes research. The panelists presenting today have\u00a0all helped young investigators at other institutions work through the\u00a0processes of study design, data analysis, paper writing, paper\u00a0submission, and publication. Don’t hesitate to reach out to senior\u00a0outcomes researchers at other institutions who have expertise in the\u00a0database and study domain you intend to study.<\/li>\n<\/ol>\n

    For\u00a0<\/em>more of our ACC.13 coverage of late-breaking clinical trials, interviews with the authors of the most important research, and blogs from our fellows on the most interesting presentations at the meeting, check out our\u00a0Coverage Headquarters<\/a>.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

    Several Cardiology Fellows who are attending ACC.13 in San Francisco this week are blogging for CardioExchange. The Fellows include\u00a0Tariq Ahmad,\u00a0Megan Coylewright,\u00a0Jeremiah Depta,\u00a0Kumar Dharmarajan,\u00a0\u00a0Payal Kohli,\u00a0and \u00a0Sandeep Mangalmurti.\u00a0View the previous post\u00a0here\u00a0and the next one here. \u00a0 I just attended a great session entitled \u201cGetting Access to Data:\u00a0Where Can Young Investigators Get Started in Clinical Research.” The\u00a0session was […]<\/p>\n","protected":false},"author":544,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[],"tags":[1711,1494,1712],"class_list":["post-35116","post","type-post","status-publish","format-standard","hentry","tag-acc-13","tag-data-sharing","tag-data-sources"],"_links":{"self":[{"href":"https:\/\/blogs.nejm.org\/cardioexchange\/wp-json\/wp\/v2\/posts\/35116","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.nejm.org\/cardioexchange\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.nejm.org\/cardioexchange\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.nejm.org\/cardioexchange\/wp-json\/wp\/v2\/users\/544"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.nejm.org\/cardioexchange\/wp-json\/wp\/v2\/comments?post=35116"}],"version-history":[{"count":0,"href":"https:\/\/blogs.nejm.org\/cardioexchange\/wp-json\/wp\/v2\/posts\/35116\/revisions"}],"wp:attachment":[{"href":"https:\/\/blogs.nejm.org\/cardioexchange\/wp-json\/wp\/v2\/media?parent=35116"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.nejm.org\/cardioexchange\/wp-json\/wp\/v2\/categories?post=35116"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.nejm.org\/cardioexchange\/wp-json\/wp\/v2\/tags?post=35116"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}