{"id":8227,"date":"2016-11-06T14:17:54","date_gmt":"2016-11-06T19:17:54","guid":{"rendered":"http:\/\/blogs.nejm.org\/hiv-id-observations\/?p=8227"},"modified":"2018-04-19T22:21:17","modified_gmt":"2018-04-20T02:21:17","slug":"id-doctors-stigma","status":"publish","type":"post","link":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/id-doctors-stigma\/2016\/11\/06\/","title":{"rendered":"Do ID Clinicians Perpetuate Our Own Stigma?"},"content":{"rendered":"<p>Infectious Diseases doctors will find this exchange familiar:<\/p>\n<p style=\"padding-left: 30px\"><strong><em>New person you&#8217;re meeting:<\/em><\/strong> \u00a0What to do you do?<br \/>\n<strong><em>ID Doc:<\/em><\/strong>\u00a0 I&#8217;m a doctor.<br \/>\n<strong><em>New person:<\/em><\/strong> \u00a0Oh &#8212; what kind?<br \/>\n<strong><em>ID Doc:<\/em><\/strong>\u00a0 A specialist in Infectious Diseases.<br \/>\n<strong><em>New person (making a face, or moving a few feet back, either to be humorous or truly frightened, or both):<\/em><\/strong> \u00a0Yuck! Well I guess someone has to do it &#8230;<\/p>\n<p>The stigma associated with Infectious Diseases\u00a0is as much a part of the field as knowing why\u00a0<em>Pneumocystis carinii<\/em>\u00a0is now\u00a0<em>Pneumocystis jirovecii,<\/em> and how to pronounce the drug class that includes linezolid and tedizolid. <a href=\"https:\/\/youtu.be\/Doc1rHflHfk\" target=\"_blank\" rel=\"noopener\">(Oxazolidinone.)<\/a><\/p>\n<p>I mention this aspect of ID as it\u00a0came up recently in the context of our shiny bells and whistles electronic medical record. One of its many features (common to most EMRs) is that you can\u00a0generate letters to patients to notify them of their lab results.<\/p>\n<p>Here&#8217;s what the header to those letters looks like; I highlighted the key problems:<\/p>\n<p><a href=\"http:\/\/blogs.nejm.org\/hiv-id-observations\/wp-content\/uploads\/sites\/2\/2016\/11\/letterhead4.png\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-8229\" src=\"http:\/\/blogs.nejm.org\/hiv-id-observations\/wp-content\/uploads\/sites\/2\/2016\/11\/letterhead4.png\" alt=\"letterhead4\" width=\"553\" height=\"93\" srcset=\"https:\/\/blogs.nejm.org\/hiv-id-observations\/wp-content\/uploads\/sites\/2\/2016\/11\/letterhead4.png 779w, https:\/\/blogs.nejm.org\/hiv-id-observations\/wp-content\/uploads\/sites\/2\/2016\/11\/letterhead4-300x50.png 300w, https:\/\/blogs.nejm.org\/hiv-id-observations\/wp-content\/uploads\/sites\/2\/2016\/11\/letterhead4-768x129.png 768w\" sizes=\"auto, (max-width: 553px) 100vw, 553px\" \/><\/a><\/p>\n<p>There are four issues\u00a0with this image,\u00a0three\u00a0small, one big. The three small items\u00a0first:<\/p>\n<ol>\n<li>That&#8217;s the old hospital insignia. Here&#8217;s the <strong><a href=\"https:\/\/upload.wikimedia.org\/wikipedia\/en\/thumb\/8\/80\/Brigham_and_Womens_Hospital_logo.svg\/878px-Brigham_and_Womens_Hospital_logo.svg.png\" target=\"_blank\" rel=\"noopener\">new one.<\/a><\/strong><\/li>\n<li>The lower-case &#8220;b&#8221; in BWH. Hello, can we get a proofreader in here?<\/li>\n<li>For some reason it&#8217;s calling our practice &#8220;bWH Infectious Diseases Medicine&#8221;, which is a term used literally nowhere else &#8212; we&#8217;re the &#8220;Division of Infectious Diseases&#8221; to the rest of the world.<\/li>\n<\/ol>\n<p>None of these is a big deal (though it is kind of ironic to see what you get for <a href=\"https:\/\/www.bostonglobe.com\/business\/2015\/05\/31\/partners-launches-billion-electronic-health-records-system\/oo4nJJW2rQyfWUWQlvydkK\/story.html\" target=\"_blank\" rel=\"noopener\">your billion dollars).<\/a><\/p>\n<p>What <em>is<\/em> a big deal, however,\u00a0is that many of our patients have made it abundantly\u00a0clear to us that they don&#8217;t want any references to &#8220;Infectious Diseases&#8221; on materials mailed to them.<\/p>\n<p>Worse would be &#8220;Infectious Diseases&#8221; on the envelope return address\u00a0&#8212; gosh, <em>anyone<\/em> could see that &#8212; but mentioning it at the top of a\u00a0letter is also off limits. (For the record, our old EMR had an option to choose &#8220;generic BWH letterhead&#8221;, and we went with that as the default.)<\/p>\n<p>We&#8217;re also not supposed to say we&#8217;re calling from &#8220;Infectious Diseases&#8221; when leaving appointment reminders or other voicemail messages. So\u00a0we don&#8217;t.<\/p>\n<p>And there&#8217;s more.<\/p>\n<p>I&#8217;ve had patients tell me that they don&#8217;t like the fact that our practice is\u00a0called &#8220;Infectious Diseases&#8221; in the hospital directory, preferring\u00a0that we be listed by some generic term &#8212; one suggested we go back to the plural, &#8220;Medical Specialties&#8221;, which is what our office\u00a0used to be called when we shared clinical space with Renal, Pulmonary, and GI. Another wanted the bland moniker &#8220;Brigham Associates&#8221; &#8212; to which I would always wonder, &#8220;associates with what?&#8221;.<\/p>\n<p>Some don&#8217;t even like sitting\u00a0in our waiting room &#8212; this is very sad, when you think about it &#8212; even though they are coming to us for <em>their own<\/em> ID problem.<\/p>\n<p>But think of how we&#8217;ve responded to our patients&#8217; concerns:<\/p>\n<ul>\n<li>Many\u00a0ID\/HIV practices or\u00a0inpatient services have various euphemisms that say nothing about the mission of the clinicians &#8212; <a href=\"https:\/\/www.ucsf.edu\/news\/2011\/06\/9988\/sfghs-ward-86-pioneering-hiv-aids-care-30-years\" target=\"_blank\" rel=\"noopener\">Ward 86<\/a>, the <a href=\"http:\/\/www.hopkinsmedicine.org\/gim\/fellowship\/moore_clinic.html\" target=\"_blank\" rel=\"noopener\">Moore Clinic<\/a>, the <a href=\"http:\/\/www.uab.edu\/medicine\/1917clinic\/\" target=\"_blank\" rel=\"noopener\">1917 Clinic<\/a>\u00a0are three famous\u00a0examples.<\/li>\n<li>A terrific group\u00a0of HIV\/ID nurses I&#8217;ve worked with for over 20 years calls themselves &#8220;The Resource Team.&#8221;<\/li>\n<li>I know a famous hospital (yes, again that other one in Boston abbreviated with 3 letters) that frequently refers to HIV as &#8220;Z virus&#8221; &#8212; a longstanding tradition that greatly precedes (and has nothing to do with) Zika.<\/li>\n<\/ul>\n<p>So back to our patient letters: \u00a0I contacted\u00a0our excellent IT liaison to see if we could change the letterhead back to something that doesn&#8217;t say &#8220;Infectious Diseases&#8221;, and included our HIV social workers in the email thread, thinking they would certainly amplify the importance of this change to our patients.<\/p>\n<p>Surprisingly, I got this back from one of them:<\/p>\n<blockquote><p>Does any other department need to protect their patients by disguising the name of where they work? It\u2019s as if we own stigma like our patients. In Social Work\u00a0they call that \u201cthe parallel process\u201d. It\u2019s kind of a part of our own identity, our reality, and for some of us our pride in our specialization. I\u2019ve been changed as a person because of it. Wow, really getting deep this morning!<br \/>\nSusan<\/p><\/blockquote>\n<p>Susan has a point. Imagine if &#8220;Dana-Farber Cancer Institute&#8221; or &#8220;Memorial Sloan Kettering Cancer Center&#8221; were asked by their patients not to include the word &#8220;Cancer&#8221; in their names. Or if a Cardiologist asked to remove his or her specialty\u00a0from their\u00a0hospital identification badge &#8212; I know one ID doctor who actually did this, as he didn&#8217;t want to make patients or hospital coworkers uncomfortable.<\/p>\n<p>Makes you think. Are we doing more harm than good in treating our field with such exceptionalism?<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Infectious Diseases doctors will find this exchange familiar: New person you&#8217;re meeting: \u00a0What to do you do? ID Doc:\u00a0 I&#8217;m a doctor. New person: \u00a0Oh &#8212; what kind? ID Doc:\u00a0 A specialist in Infectious Diseases. New person (making a face, or moving a few feet back, either to be humorous or truly frightened, or both): [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3,5,8],"tags":[423,498],"class_list":["post-8227","post","type-post","status-publish","format-standard","hentry","category-health-care","category-infectious-diseases","category-patient-care","tag-hiv","tag-infectious-diseases"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/wp-json\/wp\/v2\/posts\/8227","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/wp-json\/wp\/v2\/comments?post=8227"}],"version-history":[{"count":0,"href":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/wp-json\/wp\/v2\/posts\/8227\/revisions"}],"wp:attachment":[{"href":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/wp-json\/wp\/v2\/media?parent=8227"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/wp-json\/wp\/v2\/categories?post=8227"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.nejm.org\/hiv-id-observations\/index.php\/wp-json\/wp\/v2\/tags?post=8227"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}